A friend of mine sent me this message. The news of their friends is so
tragically sad. Being a mother of 2 (almost 3) makes me ache for their
family even more! I would feel so desperate in the quest to save my
children, as they are feeling. Please read it and pass it on to your local
friends, co-workers or family who might be comfortable with their request.
Please include them in your prayers.
Thanks and God Bless!
< Sent: Friday, October 26, 2001 9:51 AM
< Subject: HELP!!!
< < I have a huge huge request.
< < Trey and I have some dear friends of our family who
< < are in a desperate situation. They have three little
< < boys and unfortunately two of the boys have a disease
< < called ALD.
< < ALD is similiar to the adult form of ALS or Lou
< < Gerrhigs's disease. ALD attacks the brain first and
< < then moves to the muscles and is fatal. Recently, a
< < bone marrow procedure was developed to treat this
< < disease.
< < The oldest child is 9 and his disease is too advanced
< < for him to be a candidate for the procedure. The
< < second little boy is 7 and was just diagnosed with
< < ALD. Time is of the essence in order to possibly save
< < his life.
< < Now, this is where we need your help!!!! The family
< < and all of their close friends have been tested and no
< < one is a donor match.
< < If a donor is found the bone marrow is taken from the
< < hip under general anasthesa. There may be some
< < soreness in the hip for a few weeks. Elliott is then
< < given high doses of chemotherapy to kill his immune
< < system and then given the bone marrow. He will then be
< < in issolation for four months.
< < If you are willing to be tested, by a simple blood
< < test, to see if you could be a donor please go to the
< < address below on November 4th between 10:00 a.m. and
< < 5:00 p.m. (the test takes about 2 minutes)
< < Congregation Beth Israel
< < 5600 North Braeswood (between Chimney Rock and
< < Hillcroft)
< < Thank you for all of your help!!!! If you have any
< < questions, please e-mail me or call at 713/365-0472.
< < Julie
< < __________________________________________________
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